You’re here to support someone with HAE. We’re here to support you.
This page is full of TAKHZYRO resources—because we know that taking care of a loved one with hereditary angioedema (HAE) comes with questions and concerns. Learn what to expect once they start their treatment—and how to help them stay on track.
adults and adolescents Have been prescribed Takhzyro Since 2018*
*Based on third-party US specialty pharmacy data.
What to expect when
your loved one starts TAKHZYRO
Your loved one and their doctor likely chose to help prevent HAE attacks with TAKHZYRO for several reasons. One of those may have had to do with the results of the clinical studies. In those studies, people taking TAKHZYRO had fewer HAE attacks on average, and some even had periods of time with zero attacks.
If you’re caring for a child with HAE, you can find information about HAE in children. You can also explore our pediatric brochure for tips and support on helping your child stay on track with treatment.
Find more details on getting started with TAKHZYRO.
Help your loved one start off right
Your loved one's doctor prescribed TAKHZYRO to help them reduce the frequency of their HAE attacks.
Make sure your loved one remembers why they started taking TAKHZYRO.
Sticking to their HAE preventive treatment plan is the best way to help stay ahead of future attacks. Also, it’s important to make sure you or your loved one has an emergency plan in place in case of a life-threatening attack.
It’s possible your child may experience breakthrough attacks while taking TAKHZYRO. Some children may experience them more frequently in the first few months of treatment.
Your child’s on-demand medication should be readily available at all times in case of a breakthrough attack.
- Takeda Clinical Educators are available to meet with your child's school nurse to educate them on how to support your child with HAE. Together, they can create an HAE attack plan for your child. Contact your Patient Support Manager for more information. Support your loved one living with HAE. Create an HAE Attack Plan.
Encourage them to keep taking TAKHZYRO as prescribed and continue to reimagine their life with HAE.
TAKHZYRO is the #1 prescribed preventive treatment* in HAE and is approved for patients 2 years of age and older.
*Based on total patients on HAE preventive treatments according to US third-party industry healthcare data.
TAKHZYRO is an injection taken under the skin. No reconstitution is needed and it comes ready to use in a prefilled syringe.
Need some inspiration? See how Jack, a real TAKHZYRO patient, set his treatment goals.
The importance of staying on track
As a caregiver for someone with HAE, you play an important role in reminding your loved one to take TAKHZYRO exactly as their healthcare provider prescribed it. This means not skipping or missing doses. TAKHZYRO is a subcutaneous injection taken every 2 weeks. It’s eliminated as the body processes it, so it needs to be taken consistently.
A few ideas for remembering doses
Find ideas for helping you and your loved one remember their doses and other ways they can stay on track with their goals.
Watch other HAE caregivers share perspectives on taking care of a loved one with HAE—and how important it is to realize that you’re not alone.
Looking for more helpful info and tools? Check out our Patient Resources.
Is training available for caregivers who want to learn how to give TAKHZYRO to their loved ones?
Absolutely! Once somebody has been prescribed TAKHZYRO, they become eligible for a free product support program called OnePath®. This service gives those living with HAE and their caregivers the opportunity to receive at-home injection training via a trained nursing professional. Be sure to arrange for this as soon as possible to make sure you and your loved one are comfortable with the injection process and know what to do.
As a caregiver, how can I make sure I am also taking care of myself while helping my loved one through their TAKHZYRO treatment?
Caregiving is hard work, so it’s important to take care of yourself every chance you get. Remembering to accept help from others and seeking assistance when needed are two things that can help you have time for stress management. Eating nutritious foods and sleeping for enough time at regular intervals also go a long way in maintaining your physical health. Creating a calendar for treatment days can also assist in relieving the stress of missing a necessary injection.
What resources can help caregivers keep their loved ones on track with their treatment?
There are several resources caregivers might find helpful. The TAKHZYRO Text Reminder Program can help make sure you never miss a date by sending messages when it’s time for the next dose. On top of that, the TAKHZYRO Journey Journal can help you easily keep track of dosing days, attacks, and your loved one’s management plan. OnePath® can also provide support by offering educational materials, financial assistance options, and regular check-ins with a Patient Support Manager (PSM).
What kind of information should caregivers prepare for future doctor appointments or hospital visits?
Caregivers have many things they need to pay attention to in the day-to-day lives of their loved ones living with HAE. These can include:
- Any new health issues
- How often they use on-demand medication
- New or existing HAE triggers. These may include stress, exhaustion, hormonal fluctuation, or physical activity
- The location, intensity, and duration of all attacks
- What their attacks were like before preventive treatment and what they’re like now
Your loved one can use the Journey Journal to track these details. As a caregiver, you can help them update this journal and share it with their doctor. This can help everyone see how much progress they’ve made with their treatment goals.