Stay on track with TAKHZYRO

Tips for staying on top of your treatment

No matter where you are in your hereditary angioedema (HAE) and TAKHZYRO journey, it's important to make sure to take TAKHZYRO exactly as prescribed. We have the info, tools, and inspiration to help.

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Track your progress with TAKHZYRO

It's important to track your progress. Take some time to reflect on your goals. You might even want to write them down (you can use the Journey Journal that came in your Welcome Kit).

If you’re just starting TAKHZYRO, start by thinking about your experience with HAE today. This will give you a snapshot of your time "before TAKHZYRO" so you and your doctor can evaluate results. Some questions that may be worth noting:

  • How often are my attacks now?
  • How severe are they?
  • How often do I use my on-demand medication?
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Get ready for your next doctor check-in

Checking on your progress is key to success‍—‌you've been tracking those goals so you and your doctor can see just how far you've come.

Here are some discussion points for your next doctor appointment:

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Make a commitment to yourself and to TAKHZYRO

Take each dose as prescribed

TAKHZYRO continues to work as you take it, so it is important to take each dose as prescribed by your doctor. Remember also to avoid missing or skipping doses.

Breakthrough attacks

It's possible to experience breakthrough attacks while taking TAKHZYRO. Some people may experience them more frequently in the first few months of treatment.

Always keep your on-demand treatment nearby in case you have a breakthrough attack.

If you do experience a breakthrough attack, don't get discouraged. Let your doctor know and continue to take TAKHZYRO as prescribed.

Stay the course

Give TAKHZYRO 2.5 months to reach steady state. Over time, you may notice your attacks are less severe or that you’re using your on-demand treatment less. These are signs that TAKHZYRO is working.

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I stay on treatment because I remember what my HAE was like before preventive treatment. I do not want to go back there.”

Kelly

Real TAKHZYRO patient

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Setting up reminders may be key for staying on track

Follow these steps to enroll in the TAKHZYRO Text Reminder Program:

Sign up for the TAKHZYRO Text Reminder Program. Every other week, you’ll get a text message the day before and the day of your scheduled dose. Start here

Ask your loved ones to help. Reach out to a family member or friend to remind you when it’s time to take your TAKHZYRO.

Choose a dosing day. Think of something easy for your schedule and easy to remember, like "TAKHZYRO Tuesday." You can also set up calendar reminders

*Message and data rates may apply. Average of 3 messages per month. Text HELP to 36395 for more information, or text STOP to 36395 to end text reminders. View our terms and conditions at engagedrx.com/tak
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They Returned to TAKHZYRO

After starting TAKHZYRO, I decided to enroll in a trial for a new treatment. I thought maybe I could do better. Turns out I was wrong. So I called my doctor and said I wanted to return to TAKHZYRO.”

Mike

Real TAKHZYRO patient

When I was ready to get back on preventive treatment after the birth of my daughter I knew I could trust my previous experience with TAKHZYRO.”

Lexi

Real TAKHZYRO patient

WATCH THEIR STORIES

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Get answers to common questions about staying on track with TAKHZYRO

While we recommend you ask your healthcare team any treatment questions you have, here are some frequently asked questions and answers you may find helpful.

How long does it take for TAKHZYRO to work?
It takes about 10 weeks for TAKHZYRO to build up in your body. It's possible to experience breakthrough attacks while taking TAKHZYRO. Some people may experience them more frequently in the first few months of treatment. Find out more about how TAKHZYRO works
What if I miss a dose of TAKHZYRO?

If you miss a dose of TAKHZYRO, you should call your doctor to find out what to do. If you need help remembering to take your TAKHZYRO, try these tips:

  • Sign up for TAKHZYRO dosing reminders, including texts and calendar alerts.
  • Ask a friend or family member to help you remember.
  • Create a unique way to remember dosing day, like “TAKHZYRO Tuesday.”
What can I expect from treatment with TAKHZYRO?

When you take TAKHZYRO exactly as prescribed by your doctor, over time you may notice:

  • You have fewer HAE attacks, perhaps even zero attacks for periods of time
  • The HAE attacks you have are less severe
  • You use your on-demand treatment less often

Check out these study results to learn more about what you may expect from treatment with TAKHZYRO. TAKHZYRO was studied in a 6.5-month and a 2.5-year clinical study.

What are the possible side effects when taking TAKHZYRO?

TAKHZYRO may cause serious side effects, including allergic reactions. Call your healthcare provider or get emergency help right away if you experience any of the following symptoms: wheezing, difficulty breathing, chest tightness, fast heartbeat, faintness, rash, hives.

The most common side effects seen with TAKHZYRO were injection site reactions (pain, redness, and bruising), upper respiratory infection, headache, rash, dizziness, diarrhea, and muscle aches.

Check out the safety results from the 6.5-month and 2.5-year clinical studies.

Should I keep taking TAKHZYRO if I haven’t had an HAE attack in a while?
Yes, you should keep taking TAKHZYRO as prescribed. Over time, you may notice a decrease in the severity of your HAE attacks. You might even find that your HAE attacks happen less often or you are using your on-demand treatment less. These are signs that TAKHZYRO is working. But at any time, HAE attacks could start to happen more regularly, and in places that are more life-threatening (like the mouth and throat). That’s why it’s so important to keep taking TAKHZYRO as prescribed to help prevent attacks. You should keep on-demand treatment on hand (and periodically check to make sure it hasn't expired) so you're prepared to treat if an attack occurs. TAKHZYRO is not an on-demand treatment.
What if I want to start TAKHZYRO again?

While some people have stopped taking TAKHZYRO for different reasons, some may start taking it again if they feel it's the right option for them. Check out these videos about patients who’ve found their way back to TAKHZYRO.

If you feel like TAKHZYRO is the right option for you, let your doctor know you're interested in going back on treatment.

How do I travel with TAKHZYRO?
Traveling with TAKHZYRO just takes a little preparation. The first step is to contact your doctor and Takeda Patient Support Manager about a month before your trip so they can help you coordinate supplies and other important details. As for packing, make sure you carry your medications and supplies with you at all times. Do not pack them in checked luggage. Download this brochure for more important information and tips on traveling with TAKHZYRO.

Personalized product support every step of the way

Takeda Patient Support helps people who have been prescribed TAKHZYRO per the approved indication get access to their medication.

GET THE DETAILS

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