Patient Stories
Real people, real experiences
REIMAGINE
STORIES
TAKHZYRO
TALK
Every person with hereditary angioedema (HAE) has a story to share. See how these people are choosing to reimagine their lives with TAKHZYRO.
Lexi’s Reimagine Story
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From a young age, Lexi was determined not to let a diagnosis of HAE hold her back from new experiences and achievements. See how she’s following her own path to reimagining life with HAE, wherever it takes her.
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LEXI: I could have a small hand swell on a Monday, and then finally get over that, and by Wednesday or Thursday, my feet may be irritated, or my ankle may have just had a light swell. Hi, I’m Lexi, and this is my reimagine story. I’m a social media manager in Louisville, and I’m also getting my master’s degree. It’s been busy, but I love my job, and I love being in school. I was diagnosed with HAE when I was 7 years old.
LEXI: My father has it, his sister has it, and his father has it, so we were on alert. The first HAE attack I remember was a stomach attack. I was on the couch hugging myself, wondering when it would be over. After that, I started having attacks more frequently. I missed school and had to rest a lot, which was really frustrating, because I wanted to do what the other kids were doing, like playing volleyball. My best friends played, and I was so mad that I couldn’t do it. It sounds silly, but at that age, everything is really serious.
LEXI: Fortunately, when I was older, there were more treatment options available to help me manage my HAE. I went to college, met my boyfriend, D.J., and started a career. We even adopted a dog. As time went by, I felt that I was ready to take more control of my health and treatment decisions. I was interested when I heard about TAKHZYRO®, a once-every-other-week subcutaneous injection used to prevent HAE attacks in people 12 years of age and older.
LEXI: Before deciding to try another option, my doctor and I talked about every aspect of the treatment, including the potential risks associated with TAKHZYRO, including serious side effects, like allergic reactions, and the more common ones, like injection site reactions, upper respiratory infections, and headaches. We also discussed if it was a good option for me. Remember, not everyone is the same. These days, D.J. and I are on the go a lot. We love taking our dog out and going to concerts and vintage shopping. Basically, we’re huge on experiences, and that means traveling, too, most recently to New York City.
LEXI: Fitness is a big part of my life as well. I love jogging and try to get out as much as I can. Spin classes, too. When I was a kid, I didn’t know what would happen. I hated having HAE. But as treatment options became more available, I felt more positive, and that’s what I would say to others. Be positive. You may have HAE, but HAE does not have you. On average, I would have about one to two attacks per week. Since taking TAKHZYRO, the frequency of my attacks has gone down. If you are interested in learning more about reimagining your life with HAE, talk to your healthcare provider to see if TAKHZYRO is right for you.
NARRATOR: TAKHZYRO (lanadelumab) is a prescription medicine used to prevent attacks of hereditary angioedema (HAE) in people 12 years of age and older. It is not known if TAKHZYRO is safe and effective in children under 12 years of age. TAKHZYRO may cause serious side effects, including allergic reactions. Call your healthcare provider or get emergency help right away if you have any of the following symptoms: wheezing, difficulty breathing, chest tightness, fast heartbeat, faintness, rash, and/or hives.
NARRATOR: The most common side effects seen with TAKHZYRO were injection site reactions (pain, redness, and bruising), upper respiratory infection, and headache. These are not all the possible side effects of TAKHZYRO. For more information, ask your healthcare provider or pharmacist. You may report side effects to the FDA at 1-800-FDA-1088. TAKHZYRO has not been studied in pregnant or breastfeeding women. Talk to your healthcare provider about the risk of taking TAKHZYRO if you are pregnant, plan to be pregnant, are breastfeeding, or plan to breastfeed.
NARRATOR: Talk to your healthcare provider about TAKHZYRO, the only preventive HAE treatment you take as a subcutaneous injection just once every two weeks.
Marie's Reimagine Story
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Balancing family, a career, and HAE was all in a day's work for Marie. But when she realized she was actually planning to have attacks, she knew it was time to talk about preventing them.
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MARIE: When I went to the emergency room, I explained to them that I had hereditary angioedema, and I explained the treatment that I was used to receiving. And she said, “I don’t care what you think, lady. You’re gonna have your appendix out tonight.” Hi, I’m Marie, and this is my reimagine story. HAE wasn’t a thing when I grew up. And like many others, I didn’t have a diagnosis until I was an adult. Even though both my grandfather and uncle died from laryngeal swellings, and my father also experienced attacks, doctors didn’t connect our conditions.
MARIE: I had a lot of attacks when I was younger. Everybody thought they were caused by mosquito bites. The first bad attack I had was my throat when I was about 5 years old. My mother and grandmother fed me crushed ice to keep the swelling down, which from what I know now, is not a good idea for treating swells. My sister, who had a similar experience, eventually found a healthcare provider who knew a little bit about HAE. He recommended that our entire family be tested. I was finally diagnosed at the age of 18.
MARIE: I had been relatively happy with my on-demand medication, however, I recently became uneasy with only having a treatment for use when an attack happened. It was our annual Fourth of July party, and like every other year, I had an attack and wound up in bed before it was over. It finally occurred to me that I’d been planning for the attack all along. Every year, I’d look ahead at my schedule for the next few days after the party to see if I had time to deal with an attack. I went to see my doctor and she told me about TAKHZYRO®, a treatment used to prevent HAE attacks in people 12 years of age and older.
MARIE: We went over all the potential risks, such as serious effects, including allergic reaction, as well as more common risks, including injection site reactions, upper respiratory infections, and headaches. Both my doctor and I agreed it was time to start a preventative treatment, and we found that when we were considering the clinical trial results and the safety profile, the benefits of treatment with TAKHZYRO were worth the potential risks for me. I also like the dosing schedule. Taking TAKHZYRO once every two weeks fit well into my lifestyle.
MARIE: On average, I would have three or four attacks a month. Since taking TAKHZYRO, the frequency of my attacks have gone down. These days, I’m enjoying retirement and spending my free time exercising, especially through yoga. It’s a great way to get a good stretch in and practice my breathing. My husband, Al, and I also enjoy entertaining and socializing with our friends and family. I love to go out to dinner and dancing in heels. And recently, after a date night with Al, I was delighted to wake up the next morning to see a blister on my foot instead of a swell.
MARIE: Sometimes it would feel like HAE was beating us pretty bad. Now I feel like my HAE is better managed. If you’re interested in learning more about reimagining your life with HAE, talk to your healthcare provider to see if TAKHZYRO is right for you.
NARRATOR: TAKHZYRO (lanadelumab) is a prescription medicine used to prevent attacks of hereditary angioedema (HAE) in people 12 years of age and older. It is not known if TAKHZYRO is safe and effective in children under 12 years of age.
NARRATOR: TAKHZYRO may cause serious side effects, including allergic reactions. Call your healthcare provider or get emergency help right away if you have any of the following symptoms: wheezing, difficulty breathing, chest tightness, fast heartbeat, faintness, rash, and/or hives. The most common side effects seen with TAKHZYRO were injection site reactions (pain, redness, and bruising), upper respiratory infection, and headache. These are not all the possible side effects of TAKHZYRO. For more information, ask your healthcare provider or pharmacist.
NARRATOR: You may report side effects to the FDA at 1-800-FDA-1088. TAKHZYRO has not been studied in pregnant or breastfeeding women. Talk to your healthcare provider about the risk of taking TAKHZYRO if you are pregnant, plan to be pregnant, are breastfeeding, or plan to breastfeed. Talk to your healthcare provider about TAKHZYRO, the only preventive HAE treatment you take as a subcutaneous injection just once every two weeks.
Sebastian’s Reimagine Story
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With 3 kids keeping him busy, Sebastian couldn't let HAE get in the way of his family. It wasn't until his children took notice of his HAE that he knew it was time to stop living life around attacks and start preventing them.
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SEBASTIAN: A bad month for me would be just constantly swollen. Something would be always swollen. A good month would be probably going a full week with maybe one attack. Yeah, that’d be a good month. Hi, I’m Sebastian, and this is my reimagine story. I grew up like most kids with HAE. Having odd swellings here and there. I remember going to school wearing slippers because my feet were too swollen for my shoes to fit.
SEBASTIAN: Doctors always dismissed my swellings as consequences of roughhousing. But my life changed the day I had a laryngeal, or throat, attack. I was studying for a finals exam when I felt my airway constricting. I quickly realized my throat was swelling. My mom picked me up at school and sped her way to the hospital. By the time we arrived, my throat was swollen shut, and I was intubated for two days. My condition went from being a nuisance to life-threatening in 3 hours. Thankfully, an HAE specialist happened to be visiting the hospital while I was there and made my diagnosis.
SEBASTIAN: As time went on, my HAE worsened. Seven to 10 attacks a month became the norm. Eventually, I started taking on-demand treatment, but I was still living my life around attacks. What was even more upsetting was that my children began to realize I was sick. I knew it was time to do more than just treating attacks reactively. I pride myself in being an involved patient, and given my background in science, I’ve always had an interest in learning how to prevent attacks.
SEBASTIAN: That’s what led me to ask my doctor about TAKHZYRO®, a once-every-two-week subcutaneous injection used to prevent HAE attacks in people 12 years of age and older. My doctor and I discussed the potential risks, such as serious side effects, including allergic reactions, as well as more common risks, including injection site reactions, upper respiratory infections, and headaches. After considering the benefits and potential risks, we moved forward with TAKHZYRO. Since starting, the frequency and severity of my attacks has lessened, and my on-demand treatment has gone unused for a while.
SEBASTIAN: I’ve even gone months without an attack. But these are my experiences, and not everyone will be the same. I have to be active and available for my 3 little ones. It means the world to me to be able to play catch or work in the garden with them. But my favorite way to spend time with my family is going to the beach. I hope my reimagine story will help others, especially my family members with HAE. I want them to know HAE may be tough, but so are you. If you are interested in learning more about reimagining your life with HAE, talk to your healthcare provider to see if TAKHZYRO is right for you.
NARRATOR: TAKHZYRO (lanadelumab) is a prescription medicine used to prevent attacks of hereditary angioedema (HAE) in people 12 years of age and older. It is not known if TAKHZYRO is safe and effective in children under 12 years of age. TAKHZYRO may cause serious side effects, including allergic reactions. Call your healthcare provider, or get emergency help right away if you have any of the following symptoms: wheezing, difficulty breathing, chest tightness, fast heartbeat, faintness, rash, and/or hives.
NARRATOR: The most common side effects seen with TAKHZYRO were injection site reactions (pain, redness, and bruising), upper respiratory infection, and headache. These are not all the possible side effects of TAKHZYRO. For more information, ask your healthcare provider or pharmacist. You may report side effects to the FDA at 1-800-FDA-1088. TAKHZYRO has not been studied in pregnant or breastfeeding women. Talk to your healthcare provider about the risk of taking TAKHZYRO if you are pregnant, plan to be pregnant, are breastfeeding, or plan to breastfeed.
NARRATOR: Talk to your healthcare provider about TAKHZYRO, the only preventive HAE treatment you take as a subcutaneous injection just once every two weeks.
Camila’s Reimagine Story
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Camila's life of travel and learning wasn't going to change because of HAE. But her treatment had to. Hear her story of optimism in the face of life-threatening attacks.
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CAMILA: I am a school psychologist here in Texas because I love kids and teenagers. So having that opportunity of sharing or impacting positively parents and teachers and students all together was like the top of everything for me. Hi, I am Camila, and this is my reimagine story. I am from Puerto Rico, but now I live in Texas where I am a school psychologist.
CAMILA: Many people in my family have HAE: my mother, brother, aunt, uncle, cousins, and many more. I remember my first attack so clearly. I was about 5 years old, and I woke up with something wrong with my right hand. I ran to my mother and asked her what was happening. She just started crying. That was it. My first HAE attack. When I was 10, I was officially diagnosed.
CAMILA: My swells got worse as I got older, but I was determined not to let my HAE hold me back. I went to university and tried to participate as much as I could, both in and out of class. When I had my first throat swell, my doctor and I decided it was time to start on-demand treatment. Having it helped me feel more prepared to manage my HAE, which had become quite unpredictable.
CAMILA: Even so, I accomplished a lot. I studied abroad, graduated, and even got married to my biggest supporter, my husband, Jorge. After a while, we decided to relocate to Texas, which was a big change, but an exciting one. However, I was having more frequent throat swells. So I began to discuss treatment options with my doctor that could help me potentially prevent future attacks.
CAMILA: He told me that one option might be TAKHZYRO®, a once-every-two-week subcutaneous injection used to prevent HAE attacks in people 12 years of age and older. He also told me that patients in the trial experienced fewer and less severe attacks. We made sure to discuss the potential risks, such as serious side effects, including allergic reactions, as well as more common side effects, including injection site reactions, upper respiratory infections, and headaches.
CAMILA: I was on board with all the benefits and the risks, so he signed me up. Everyone is different, though. On average, I was having three to four attacks per month before starting treatment. I’ve been on TAKHZYRO for quite a while now, and I can happily say that it has helped me reduce the frequency and severity of my attacks. I’ve even gone a month without an attack. This is my experience, and not everyone will be the same. My husband and I have really been enjoying all that Texas has to offer.
CAMILA: We are always trying new places to eat, and we love to go dancing. That’s how we first met years ago. We also love to travel and are always looking for new places to visit and explore. I am optimistic for the future, both for me and for my family, and I want to share that optimism with other people who have HAE. Keep your head held high, and have faith that things can get better. If you’re interested in learning more about reimagining your life with HAE, talk to your healthcare provider to see if TAKHZYRO is right for you.
NARRATOR: TAKHZYRO (lanadelumab) is a prescription medicine used to prevent attacks of hereditary angioedema (HAE) in people 12 years of age and older. It is not known if TAKHZYRO is safe and effective in children under 12 years of age. TAKHZYRO may cause serious side effects, including allergic reactions. Call your healthcare provider or get emergency help right away if you have any of the following symptoms: wheezing, difficulty breathing, chest tightness, fast heartbeat, faintness, rash, and/or hives. The most common side effects seen with TAKHZYRO were injection site reactions (pain, redness, and bruising), upper respiratory infection, and headache.
NARRATOR: These are not all the possible side effects of TAKHZYRO. For more information, ask your healthcare provider or pharmacist. You may report side effects to the FDA at 1-800-FDA-1088. TAKHZYRO has not been studied in pregnant or breastfeeding women. Talk to your healthcare provider about the risk of taking TAKHZYRO if you are pregnant, plan to be pregnant, are breastfeeding, or plan to breastfeed. Talk to your healthcare provider about TAKHZYRO, the only preventive HAE treatment you take as a subcutaneous injection just once every two weeks.
Historia de Reimagine de Camila
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La vida de viajes y aprendizaje de Camila no iba a cambiar debido al angioedema hereditario (hereditary angioedema, HAE). Pero su tratamiento sí debió hacerlo. Escuche su historia de optimismo ante los ataques potencialmente mortales.
Consulte la Información de prescripción completa, incluyendo la información para los pacientes.
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CAMILA: Soy psicóloga escolar y trabajo aquí, en Texas porque me encantan los niños y adolescentes, así que tener esa oportunidad de compartir con los padres, profesores y estudiantes todos juntos y de generar un impacto positivo en ellos, para mí significó llegar a la cima. Hola, soy Camila y esta es mi historia reimagine. Soy de Puerto Rico pero ahora vivo en Texas donde soy psicóloga escolar.
CAMILA: Muchos de mis familiares tienen angioedema hereditario, incluyendo mi madre, mi hermano, mi tía, mis tíos y otros. Me acuerdo muy bien de mi primer ataque. Tenía unos cinco años y me desperté con un problema en mi mano derecha. Corrí a buscar a mi madre y le pregunté qué estaba pasando. Ella simplemente se puso a llorar. Así fue mi primer ataque de angioedema hereditario. Cuando tenía unos 10 años me lo diagnosticaron oficialmente.
CAMILA: Las inflamaciones fueron empeorando a medida que crecía. Pero estaba decidida a impedir que mi AEH se interpusiera en mi camino. Fui a la universidad e intenté participar lo máximo posible dentro y fuera de clase. Cuando tuve la primer inflamación de la garganta junto con mi médico decidimos que era hora de empezar un tratamiento a demanda. Eso me ayudó a sentirme más preparada para controlar mi angioedema que se había tornado bastante impredecible.
CAMILA: A pesar de ello logré muchas cosas. Estudié en el extranjero, me gradué y me casé con mi mayor sostén, mi esposo Jorge. Después de un tiempo decidimos mudarnos a Texas, lo cual fue un cambio muy grande pero a la vez muy emocionante. Sin embargo, empecé a tener inflamaciones de la garganta con más frecuencia. Así que empecé a estudiar con mi médico opciones de tratamiento que posiblemente me pudieran ayudar a prevenir futuros ataques.
CAMILA: Él me dijo que tenía una de las opciones que era TAKHZYRO, una inyección subcutánea que se aplica una vez cada dos semanas para prevenir los ataques de angioedema hereditario en personas mayores de 12 años. También me dijo que los pacientes del ensayo tuvieron menos ataques y de menor intensidad.
CAMILA: Hablamos de los riesgos potenciales como los efectos secundarios graves que incluyen reacciones alérgicas y los efectos secundarios más comunes que incluyen reacciones en el lugar de la inyección, infecciones de las vías respiratorias superiores y dolor de cabeza. Estuve de acuerdo con todos los beneficios y riesgos así que iniciamos el tratamiento.
CAMILA: Pero recuerda que todas las personas son diferentes. Antes de empezar el tratamiento solía tener un promedio de tres a cuatro ataques por semana. Ya llevo bastante tiempo con TAKHZYRO® y felizmente puedo decir que me ha ayudado a reducir la frecuencia y la gravedad de mis ataques. Esta ha sido a mí experiencia y no va a ser igual para todos.
CAMILA: Mi esposo y yo hemos estado disfrutando realmente de todo lo que ofrece Texas. Siempre vamos a comer a lugares nuevos y nos encanta ir a bailar. Así fue cómo nos conocimos hace muchos años. También nos encanta viajar y siempre estamos buscando lugares nuevos para conocer y explorar. Veo el futuro con optimismo, tanto para mí como para mi familia. Y quiero compartir ese optimismo con otras personas que tengan angioedema hereditario. Así que mantengan su cabeza bien en alto y confíen en que las cosas pueden mejorar.
CAMILA: Si te interesa obtener más información sobre cómo reimaginar tu vida con angioedema hereditario consulta a tu proveedor de atención médica para ver si TAKHZYRO es adecuado para ti.
NARRATOR: TAKHZYRO, lanadelumab, es un medicamento de venta con receta que se utiliza para prevenir los ataques de angioedema hereditario, AEH, en personas de 12 años de edad y mayores.
NARRATOR: Se desconoce si TAKHZYRO es seguro y eficaz en niños menores de 12 años. TAKHZYRO puede provocar efectos secundarios graves que incluyen reacciones alérgicas. Llame a su proveedor de atención médica o busque ayuda de emergencia de inmediato si tiene alguno de los siguientes síntomas: sibilancia, dificultad para respirar, opresión en el pecho, ritmo cardíaco acelerado, desmayos, sarpullido, urticaria.
NARRATOR: Los efectos secundarios más frecuentes observados con TAKHZYRO fueron reacciones en el lugar de la inyección, dolor, enrojecimiento y moretones, infección en las vías respiratorias superiores y dolor de cabeza. Estos no son todos los posibles efectos secundarios de TAKHZYRO. Para obtener más información pregunte a su proveedor de atención médica o su farmacéutico.
NARRATOR: Puede informar de los efectos secundarios a la Administración de Alimentos y Medicamentos, FDA, llamando al 1-800-FDA-1088. TAKHZYRO no ha sido estudiado en mujeres embarazadas o en período de lactancia. Hable con su proveedor de atención médica acerca del riesgo de recibir TAKHZYRO si usted está embarazada, planea quedar embarazada, está amamantando o tiene intención de amamantar.
NARRATOR: Hable con su proveedor de atención médica sobre TAKHZYRO. El único tratamiento preventivo para el AEH que se administra como una inyección subcutánea solo una vez cada dos semanas.
Get the inside scoop on TAKHZYRO from real people with HAE and caregivers. See how they answer common questions about life with HAE and learn from their personal experiences.
Topics
About TAKHZYRO
TAKHZYRO Experiences
Caregiver Support
Living with HAE
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What made you want to start TAKHZYRO?
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See what first made some real TAKHZYRO patients interested in starting. Think you’re ready to talk to a doctor about TAKHZYRO? This Doctor Discussion Guide can help you start the conversation.
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JENNY: What made me want to start TAKHZYRO®? I love that the dosing schedule is every two weeks.
BOBBI: I was interested in trying TAKHZYRO because I heard that it could lessen the frequency of my attacks and also the severity of my attacks, and that was something that meant a lot to me.
KELLY: I like the fact that most people were able to inject within a minute or less.
LEXI: I was, you know, trying to find any treatment method that just allowed me to take my medicine less. I wanted a chance to just have to have fewer attacks, the opportunity to have fewer attacks, and to be able to take medicine less.
LEXI: And so, having both of those opportunities, I knew I needed to give it a try.
SEBASTIAN: What interested me about TAKHZYRO was that it was every two weeks and that it wasn't plasma-based. That was really important.
NARRATOR: TAKHZYRO (lanadelumab) is a prescription medicine used to prevent attacks of hereditary angioedema (HAE) in people 12 years of age and older. It is not known if TAKHZYRO is safe and effective in children under 12 years of age. TAKHZYRO may cause serious side effects, including allergic reactions.
NARRATOR: Call your healthcare provider or get emergency help right away if you have any of the following symptoms: wheezing, difficulty breathing, chest tightness, fast heartbeat, faintness, rash, and/or hives. The most common side effects seen with TAKHZYRO were injection site reactions (pain, redness, and bruising), upper respiratory infection, and headache. These are not all the possible side effects of TAKHZYRO. For more information, ask your healthcare provider or pharmacist. You may report side effects to the FDA at 1-800-FDA-1088.
NARRATOR: TAKHZYRO has not been studied in pregnant or breastfeeding women. Talk to your healthcare provider about the risk of taking TAKHZYRO if you are pregnant, plan to be pregnant, are breastfeeding, or plan to breastfeed. Talk to your healthcare provider about TAKHZYRO, the only preventive HAE treatment you take as a subcutaneous injection just once every two weeks.
What happened after you decided to start TAKHZYRO?
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Wondering what happens after you and your doctor decide that TAKHZYRO is right for you? Hear about the next steps from real TAKHZYRO patients. Want more info? Keep learning about product support right here.
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LEXI: I was able to have a nurse come and train me on how to inject, and she came twice because I really wanted to feel comfortable with taking medicine and making sure that this was the decision that I was gonna make. And so, after she came and trained me twice, I’ve taken it ever since on my own, injecting myself.
ANDREA: The process for getting started with TAKHZYRO® was pretty much straight through. My doctor mentioned that he wanted me to try TAKHZYRO. The next thing I heard from OnePath®.
JEANIE: So a nurse came to my house to train my son and myself. I believe she came out twice, if I can recall correctly and she just put me at ease. She put us at ease. She was really nice and just explained how to do it. We included my daughter into the process because she’s been through all of this with us and we did it together as a family. I did it first but she showed us, and she made sure that we were comfortable with what we were doing before.
KELLY: After getting my prescription for TAKHZYRO, I worked with my OnePath Patient Support Manager to help access my medication. She actually set up a home health nurse to come out to teach me how to administer the injection.
NARRATOR: TAKHZYRO (lanadelumab) is a prescription medicine used to prevent attacks of hereditary angioedema (HAE) in people 12 years of age and older. It is not known if TAKHZYRO is safe and effective in children under 12 years of age. TAKHZYRO may cause serious side effects, including allergic reactions.
NARRATOR: Call your healthcare provider or get emergency help right away if you have any of the following symptoms: wheezing, difficulty breathing, chest tightness, fast heartbeat, faintness, rash, and/or hives. The most common side effects seen with TAKHZYRO were injection site reactions (pain, redness, and bruising), upper respiratory infection, and headache. These are not all the possible side effects of TAKHZYRO. For more information, ask your healthcare provider or pharmacist. You may report side effects to the FDA at 1-800-FDA-1088.
NARRATOR: TAKHZYRO has not been studied in pregnant or breastfeeding women. Talk to your healthcare provider about the risk of taking TAKHZYRO if you are pregnant, plan to be pregnant, are breastfeeding, or plan to breastfeed. Talk to your healthcare provider about TAKHZYRO, the only preventive HAE treatment you take as a subcutaneous injection just once every two weeks.
How do you remember to take TAKHZYRO?
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Learn how some real TAKHZYRO patients stay on schedule. Want help remembering to take your TAKHZYRO? It’s simple to sign up for reminder texts or calendar alerts.
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JENNY: How do I remember to take TAKHZYRO®? I use my calendar app, and I set the event to occur every two weeks.
BOBBI: I use the calendar on my phone, and also my girls remind me when it’s time to give myself the injection.
KYLE: So this is a little bit of a weird one. I have a pet snake, and she is on my schedule with feeding and my medicine. So it’s an every-two-week thing saying, oh, I need to feed her so I need to take my medicine as well.
DYLAN: I generally have a reminder on my phone that will tell me when to take my medication or that it would be every other week, and when I wake up in the morning, I get a simple, little reminder to take my medication. And I take it, and I go about my day.
ANDREA: I remember to to take my TAKHZYRO by listing it on my calendar for every other Saturday between eating my French toast and my bacon.
MARSHA: I got a postcard in the mail that notified me about the text reminding program and it sounded really good, and I signed up right away. And they sent me a text and wanted to know the days of my injection and how often I needed them, and they started coming in right on time.
KEMMI: So I get a text alert the day before so that I make sure that I have my medicine ready and then another text the day of.
KELLY: I set alarms on my phone, and I’ve got it to where it presets. So every time that it’s time for my injection, it automatically goes off, and I have a calendar that I use for work that I see every day that I write it in too.
JUAN: I help my wife remember to take TAKHZYRO by using the calendar app on our phone. We set up a recurring event that repeats itself and reminds us that today is TAKHZYRO day.
NARRATOR: TAKHZYRO (lanadelumab) is a prescription medicine used to prevent attacks of hereditary angioedema (HAE) in people 12 years of age and older. It is not known if TAKHZYRO is safe and effective in children under 12 years of age. TAKHZYRO may cause serious side effects, including allergic reactions. Call your healthcare provider or get emergency help right away if you have any of the following symptoms: wheezing, difficulty breathing, chest tightness, fast heartbeat, faintness, rash, and/or hives.
NARRATOR: The most common side effects seen with TAKHZYRO were injection site reactions (pain, redness, and bruising), upper respiratory infection, and headache. These are not all the possible side effects of TAKHZYRO. For more information, ask your healthcare provider or pharmacist. You may report side effects to the FDA at 1-800-FDA-1088. TAKHZYRO has not been studied in pregnant or breastfeeding women. Talk to your healthcare provider about the risk of taking TAKHZYRO is you are pregnant, plan to be pregnant, are breastfeeding, or plan to breastfeed.
NARRATOR: Talk to your healthcare provider about TAKHZYRO, the only preventive HAE treatment you take as a subcutaneous injection just once every two weeks.
What is it like to travel with TAKHZYRO?
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Planning is everything. Get TAKHZYRO travel tips from real patients.
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LEXI: I've always loved to travel. I love to take quick weekend trips where I'm gone from Friday to Monday. I love to take long trips where I get to relax and just enjoy wherever I'm at. Traveling with TAKHZYRO® allows me to do that with more confidence, in having to take my medicine either before I leave for my trip because it was the time to inject and I don't have to inject again for two more weeks.
KEMMI: My patient support manager, with OnePath® sent me a travel kit, and it includes a cold pack to keep my medication cold, and I've traveled with it by air.
KEMMI: I've had no problems going through security. And if I'm just going away for the weekend, it's really easy to take with me.
JACK: For myself, it's great to know that TAKHZYRO is once every two weeks. So, a lot of times when I'm traveling a lot, I can plan around when I need to give myself an injection.
KYLE: Honestly, I really haven't had to travel with TAKHZYRO, because it's an every-two-week administer, and I take it before I even have to travel. It's just how my schedule works, actually.
KYLE: And if I do have to travel with it, my doctor has provided me a travel note saying that I have to have this for medical purposes.
LINDA: I had previously been taking a carry-on on the plane with just medication and had to check a bag. Now, with TAKHZYRO, I have the freedom of packing one dose of medication in one box, maybe two if I'm going to have an extended stay.
NARRATOR: TAKHZYRO (lanadelumab) is a prescription medicine used to prevent attacks of hereditary angioedema (HAE) in people 12 years of age and older.
NARRATOR: It is not known if TAKHZYRO is safe and effective in children under 12 years of age. TAKHZYRO may cause serious side effects, including allergic reactions. Call your healthcare provider or get emergency help right away if you have any of the following symptoms: wheezing, difficulty breathing, chest tightness, fast heartbeat, faintness, rash, and/or hives. The most common side effects seen with TAKHZYRO were injection site reactions (pain, redness, and bruising), upper respiratory infection, and headache.
NARRATOR: These are not all the possible side effects of TAKHZYRO. For more information, ask your healthcare provider or pharmacist. You may report side effects to the FDA at 1-800-FDA-1088. TAKHZYRO has not been studied in pregnant or breastfeeding women. Talk to your healthcare provider about the risk of taking TAKHZYRO if you are pregnant, plan to be pregnant, are breastfeeding, or plan to breastfeed. Talk to your healthcare provider about TAKHZYRO, the only preventive HAE treatment you take as a subcutaneous injection just once every two weeks.
The Making of TAKHZYRO
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Have questions about how TAKHZYRO is made? Real TAKHZYRO patients Jenny and Bobbi have some answers. Next, learn how TAKHZYRO works in the body.
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JENNY: Hello, everyone. I’m Jenny, and this is Bobbi.
BOBBI: We both have HAE, and we also both use TAKHZYRO®.
JENNY: Mm-hmm. TAKHZYRO is a medication used to prevent attacks of HAE in patients 12 years of age and older.
BOBBI: As you may know, TAKHZYRO is not made from human plasma. This made me wonder: What is it made from?
JENNY: Mm-hmm, right. Me too. So when my doctor prescribed TAKHZYRO for me, we talked about how it was made.
BOBBI: We thought other people might be wondering too. So we’re here to tell you.
JENNY: TAKHZYRO is the only preventive treatment for HAE that’s made using cells in a lab.
BOBBI: This means it does not depend on human plasma donations.
JENNY: Correct. Instead, the cells are multiplied as needed to make TAKHZYRO.
BOBBI: And while the cells originally came from hamster ovaries, no hamsters are used or harmed in the making of TAKHZYRO.
JENNY: A similar process has been used for decades to make medications for many other conditions, including osteoporosis, rheumatoid arthritis, Crohn’s disease, psoriasis, and asthma.
BOBBI: That’s pretty cool, right?
JENNY: I think so.
BOBBI: You can ask your doctor for more information about this if you are curious. In the meantime, here’s some important safety information you should know, too.
NARRATOR: TAKHZYRO (lanadelumab) is a prescription medicine used to prevent attacks of hereditary angioedema (HAE) in people 12 years of age and older. It is not known if TAKHZYRO is safe and effective in children under 12 years of age. TAKHZYRO may cause serious side effects, including allergic reactions. Call your healthcare provider or get emergency help right away if you have any of the following symptoms: wheezing, difficulty breathing, chest tightness, fast heartbeat, faintness, rash, and/or hives.
NARRATOR: The most common side effects seen with TAKHZYRO were injection site reactions (pain, redness, and bruising), upper respiratory infection, and headache. These are not all the possible side effects of TAKHZYRO. For more information, ask your healthcare provider or pharmacist. You may report side effects to the FDA at 1-800-FDA-1088. TAKHZYRO has not been studied in pregnant or breastfeeding women. Talk to your healthcare provider about the risk of taking TAKHZYRO if you are pregnant, plan to be pregnant, are breastfeeding, or plan to breastfeed.
NARRATOR: Talk to your healthcare provider about TAKHZYRO, the only preventive HAE treatment you take as a subcutaneous injection just once every two weeks.
What’s the best thing about being a caregiver?
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Caregivers share their personal perspectives they gained from supporting their loved ones.
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JASON: The best thing about being a caregiver is informing other people and other caregivers and telling your story to them to help them possibly relieve some stress and worrying in their lives.
JUAN: The best thing about being a caregiver is being able to advocate for your loved one and being able to make sure that they get the care that they need, and also being able to educate others around you in the community about HAE and how to manage the condition.
HEATHER: The best thing about being a caregiver, to me, is that you have somebody's back.
HEATHER: You're actually helping making somebody else's life better and that they have somebody to lean on, and they're not alone. You know that, you know, I've got you. I've got you. We're going to do this together. We're going to stay organized. We're going to stay focused, and you're going to get through this.
NARRATOR: TAKHZYRO® (lanadelumab) is a prescription medicine used to prevent attacks of hereditary angioedema (HAE) in people 12 years of age and older. It is not known if TAKHZYRO is safe and effective in children under 12 years of age.
NARRATOR: TAKHZYRO may cause serious side effects, including allergic reactions. Call your healthcare provider or get emergency help right away if you have any of the following symptoms: wheezing, difficulty breathing, chest tightness, fast heartbeat, faintness, rash, and/or hives. The most common side effects seen with TAKHZYRO were injection site reactions (pain, redness, and bruising), upper respiratory infection, and headache. These are not all the possible side effects of TAKHZYRO. For more information, ask your healthcare provider or pharmacist.
NARRATOR: You may report side effects to the FDA at 1-800-FDA-1088. TAKHZYRO has not been studied in pregnant or breastfeeding women. Talk to your healthcare provider about the risk of taking TAKHZYRO if you are pregnant, plan to be pregnant, are breastfeeding, or plan to breastfeed. Talk to your healthcare provider about TAKHZYRO, the only preventive HAE treatment you take as a subcutaneous injection just once every two weeks.
What advice do you have for other caregivers?
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Educate yourself, be prepared, remember there’s a community of support out there – hear more thoughts and advice from fellow caregivers.
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BOBBI: For other caregivers dealing with HAE, I think the biggest thing you could do is just be supportive and try to understand even if you don't truly understand what that person is going through. But just be there, and love them through it.
JASON: My advice to a new caregiver is to ask a lot of questions, get a lot of answers, and don't be scared to ask questions. There's a lot of people out there that can help, have answers, that they have gone through in their life. It may help them out.
PAM: I would tell caregivers first of all, if you don't have HAE, is to find out about it, to-to know what's going on, and what things need to be done because sometimes those attacks can be an emergency or a life-threatening situation. So, you need to be prepared about what needs to happen for the person who is having the attack. And then I think it's to be sensitive to what's going on with them, to find out or look for clues as to when they might be having attacks coming on, and they may not even recognize it themselves.
JUAN: What I would like say to other caregivers is don't lose hope. There is support out there. There is help out there, and there's a community of people that have gone through the same exact situation that you are in, and there are people that you can talk to.
NARRATOR: TAKHZYRO® (lanadelumab) is a prescription medicine used to prevent attacks of hereditary angioedema (HAE) in people 12 years of age and older. It is not known if TAKHZYRO is safe and effective in children under 12 years of age.
NARRATOR: TAKHZYRO may cause serious side effects, including allergic reactions. Call your healthcare provider or get emergency help right away if you have any of the following symptoms: wheezing, difficulty breathing, chest tightness, fast heartbeat, faintness, rash, and/or hives. The most common side effects seen with TAKHZYRO were injection site reactions (pain, redness, and bruising), upper respiratory infection, and headache. These are not all the possible side effects of TAKHZYRO. For more information, ask your healthcare provider or pharmacist.
NARRATOR: You may report side effects to the FDA at 1-800-FDA-1088. TAKHZYRO has not been studied in pregnant or breastfeeding women. Talk to your healthcare provider about the risk of taking TAKHZYRO if you are pregnant, plan to be pregnant, are breastfeeding, or plan to breastfeed. Talk to your healthcare provider about TAKHZYRO, the only preventive HAE treatment you take as a subcutaneous injection just once every two weeks.
What was your diagnostic journey for HAE?
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For some people, getting accurately diagnosed with HAE can be a challenging journey. See what life was like for these patients—before and after—learning they had HAE.
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KYLE: When I got first diagnosed with HAE, I can bring myself back to that exact day. It was Halloween and my face is swollen up. I felt like a monster. And I was the only one that couldn’t take my mask off. I was searching for an answer, and I finally found it. Yes, this sounds weird. It felt like I was punched in the gut, and my world was crumbling down around me. But since then, I’ve grown stronger. HAE lives with me, and I don’t live with it. I don’t let it control me, and it’s an amazing experience to come along to where I’m at now.
NINA: My journey of getting diagnosed with HAE was long and difficult. I was the first person in the family to actually be diagnosed, and I went through every physician and every specialty that was available to find out what was wrong with me. And I had been told, everything from it’s all in your head and it’s-you’re fine to there’s something wrong but we don’t know what it is, we don’t know what to do for it, and we don’t know how to help you.
NINA: So it was really, really quite difficult, um, not having a family history on paper or anybody who had plowed the road, so to speak, before me. I was doing it all on my own. And I almost gave up several times, but then I thought, well, if I don’t do it for my family who will? I’ve got children and grandchildren, and I don’t want them to have to go through the entire path that I did because I only got diagnosed when I was 50 years old. So I had many, many, many years before I was diagnosed.
PAM: Getting diagnosed with HAE, for me, took years. I spent more than a decade probably in the emergency room with uncontrollable vomiting and excruciating pain and really no answers as to what was wrong. And it wasn’t until I took one of my daughters in because she was having asthma and the doctor saw that my hand was swollen, and he says what’s going on? I’m sure he was concerned that I was having some kind of allergic reaction. And I said, I don’t know, it’s just swollen and it’s really not going down. And he took a look at it and said I think you may have hereditary angioedema.
PAM: I said, what’s that? What can you do for it? And at that point, there really was nothing you could do for it. So I just lived my life without any options and really answers for a long time. And then, we started making progress and seeing medicines become available. But it was years and years, more than a decade before I was able to get an answer as to what was going on.
NARRATOR: TAKHZYRO® (lanadelumab) is a prescription medicine used to prevent attacks of hereditary angioedema (HAE) in people 12 years of age and older. It is not known if TAKHZYRO is safe and effective in children under 12 years of age. TAKHZYRO may cause serious side effects, including allergic reactions. Call your healthcare provider or get emergency help right away if you have any of the following symptoms: wheezing, difficulty breathing, chest tightness, fast heartbeat, faintness, rash, and/or hives.
NARRATOR: The most common side effects seen with TAKHZYRO were injection site reactions (pain, redness, and bruising), upper respiratory infection, and headache. These are not all the possible side effects of TAKHZYRO. For more information, ask your healthcare provider or pharmacist. You may report side effects to the FDA at 1-800-FDA-1088. TAKHZYRO has not been studied in pregnant or breastfeeding women. Talk to your healthcare provider about the risk of taking TAKHZYRO if you are pregnant, plan to be pregnant, are breastfeeding, or plan to breastfeed.
NARRATOR: Talk to your healthcare provider about TAKHZYRO, the only preventive HAE treatment you take as a subcutaneous injection just once every two weeks.
How do you see the future with HAE?
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These patients all have a story to share about diagnosis and managing HAE in their day-to-day lives. But, what’s next? Hear thoughts on the future of HAE from people who live with it every day.
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JENNY: I see a hopeful future for people with HAE, both with preventative treatment and acute treatment.
NINA: I can’t wait to see how the newer generation is going to do with the treatment that’s available now. They will have a very, very different life than we did.
KELLY: I feel hopeful for the future for HAE patients. I think that we’re on a positive note and it’s——we only have one way to go, and that’s up.
JUAN: I see a hopeful future for people with HAE now that we have different options for treatment, both acute and prophylactic.
SCOTT: I see the future as being much brighter with technological developments in medication and science. I think we’ve come a long way from where we were before. It’s much easier to connect with people and find out about advancements in it and to meet with other people that have it, and really learn from them as well.
PAM: I see the future of HAE at this point in time as one of——not one of the——as the brightest I’ve ever seen with the most promise because we have a lot of options. We have a lot of information, and we’ve got a very proactive group that works on continuing to make things better for us.
PAM: So as far as I’m concerned, the future’s never been better for those of us with HAE.
NARRATOR: TAKHZYRO® (lanadelumab) is a prescription medicine used to prevent attacks of hereditary angioedema (HAE) in people 12 years of age and older. It is not known if TAKHZYRO is safe and effective in children under 12 years of age. TAKHZYRO may cause serious side effects, including allergic reactions. Call your healthcare provider or get emergency help right away if you have any of the following symptoms: wheezing, difficulty breathing, chest tightness, fast heartbeat, faintness, rash, and/or hives.
NARRATOR: The most common side effects seen with TAKHZYRO were injection site reactions (pain, redness, and bruising), upper respiratory infection, and headache. These are not all the possible side effects of TAKHZYRO. For more information, ask your healthcare provider or pharmacist. You may report side effects to the FDA at 1-800-FDA-1088. TAKHZYRO has not been studied in pregnant or breastfeeding women. Talk to your healthcare provider about the risk of taking TAKHZYRO if you are pregnant, plan to be pregnant, are breastfeeding, or plan to breastfeed.
NARRATOR: Talk to your healthcare provider about TAKHZYRO, the only preventive HAE treatment you take as a subcutaneous injection just once every two weeks.
What does HAE Day mean to you?
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Every year the HAE community comes together to reflect and raise awareness on hae day :-). Hear what May 16th means from people with HAE and their family members.
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LEXI: HAE Day, for me, means an opportunity to just reflect on where I’ve come from and where I’m headed with HAE, reflecting on my family who also has the condition, and where we've been, and you know, again, where we're headed as a family. And then the community. I mean, there are people who are just advocating for patients every single day but that one day to be able to just pause and be thankful for the opportunity to have a day for a condition that is, was seemingly invisible for a long time is huge, and it’s so impactful.
BOB: It is May 16th, but every day for me and my family is HAE Day. Having a treatment plan currently that works for me and, my lifestyle, I celebrate everyday as HAE day.
KEMMI: Well, knowing that HAE has a dedicated day is an opportunity to help share information with my friends and my family who might not understand it, who’ve been alongside me in this journey of before I was diagnosed and being concerned about what was wrong. And now, it’s just a chance for them to get involved and ask questions and to learn themselves and to be a part of this alongside me.
MARIE: It’s hard to believe that so many people have never heard of it. I know it’s a very rare disease but I feel good that I’m making them aware that this is out there for them.
KYLE: We still come together and we celebrate and raise awareness so everybody can be aware and enjoy the community that we have and the network that we have.
NARRATOR: TAKHZYRO® (lanadelumab) is a prescription medicine used to prevent attacks of hereditary angioedema (HAE) in people 12 years of age and older. It is not known if TAKHZYRO is safe and effective in children under 12 years of age. TAKHZYRO may cause serious side effects, including allergic reactions. Call your healthcare provider or get emergency help right away if you have any of the following symptoms: wheezing, difficulty breathing, chest tightness, fast heartbeat, faintness, rash, and/or hives.
NARRATOR: The most common side effects seen with TAKHZYRO were injection site reactions (pain, redness, and bruising), upper respiratory infection, and headache. These are not all the possible side effects of TAKHZYRO. For more information, ask your healthcare provider or pharmacist. You may report side effects to the FDA at 1-800-FDA-1088. TAKHZYRO has not been studied in pregnant or breastfeeding women. Talk to your healthcare provider about the risk of taking TAKHZYRO if you are pregnant, plan to be pregnant, are breastfeeding, or plan to breastfeed.
NARRATOR: Talk to your healthcare provider about TAKHZYRO, the only preventive HAE treatment you take as a subcutaneous injection just once every two weeks.
What have you learned from other people with HAE?
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You are not alone in HAE. Hear why some people with HAE feel it’s so important to connect with others who have been where they are.
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KYLE: I’ve learned that we’re all family. No matter where we come from, no matter what lifestyle we have, we’re all a huge family.
MARSHA: I’ve learned a lot from other HAE patients, and the main thing I’ve learned is how strong they are, and that in turn has revealed to me that I’m strong, too. And I never thought of myself as a strong person, but now I can see that to have survived what I’ve been through does make me a strong person. And seeing how they conquer the issues in their lives, it really gives me strength to go on.
BOB: So, one of the things that I’ve learned from other people that also have HAE is that we’re, we are a resilient group of people. We’ve been knocked down, we get back up, and we’ve got to take the advice of others that have walked in our shoes.
KEMMI: The HAE community of patients is a relatively small one, so we communicate with one another a lot. The biggest thing that I’ve learned is I’m not alone. I have a community of support that has experienced the things that I’ve been through, whether it had been misdiagnosis or delays in diagnosis. We discuss future treatments and possibilities. And it has meant a lot to me to have that community support and to be able to offer support to others as well.
SCOTT: I think the most important thing I’ve learned from other patients with HAE is you’re not alone. Especially with rare diseases, it’s easy to get caught in that cycle of thinking I’m the only one or I’m the only one that can be affected, and it doesn’t matter to anybody else. But there’s really a lot of people it affects including people that aren’t patients. And it’s important to remember that because they can help you.
SEDONA: The HAE community has taught me just to stay positive through the good times and bad. And they’re always there for you. And my boyfriend has HAE also, and he has taught me to be more proactive with my health and he’s helped me a lot and I’ve helped him a lot through it. And we’ve grown together as patients and learned how to take care of ourselves to the best of our ability.
NARRATOR: TAKHZYRO (lanadelumab) is a prescription medicine used to prevent attacks of hereditary angioedema (HAE) in people 12 years of age and older. It is not known if TAKHZYRO is safe and effective in children under 12 years of age. TAKHZYRO may cause serious side effects, including allergic reactions. Call your healthcare provider or get emergency help right away if you have any of the following symptoms: wheezing, difficulty breathing, chest tightness, fast heartbeat, faintness, rash, and/or hives.
NARRATOR: The most common side effects seen with TAKHZYRO were injection site reactions (pain, redness, and bruising), upper respiratory infection, and headache. These are not all the possible side effects of TAKHZYRO. For more information, ask your healthcare provider or pharmacist. You may report side effects to the FDA at 1-800-FDA-1088. TAKHZYRO has not been studied in pregnant or breastfeeding women. Talk to your healthcare provider about the risk of taking TAKHZYRO if you are pregnant, plan to be pregnant, are breastfeeding, or plan to breastfeed.
NARRATOR: Talk to your healthcare provider about TAKHZYRO, the only preventive HAE treatment you take as a subcutaneous injection just once every two weeks.
How did you hear about TAKHZYRO?
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See how real people with HAE found out about TAKHZYRO for the first time and why they decided with their doctors to give it a try.
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NARRATOR: TAKHZYRO is a prescription medicine used to prevent attacks of hereditary angioedema (HAE) in people 12 years of age and older. TAKHZYRO may cause serious side effects, including allergic reactions. The most common side effects seen with TAKHZYRO were injection site reactions (pain, redness, and bruising), upper respiratory infection, and headache.
JACK: The first time I heard about TAKHZYRO was in my doctor’s office and it had just been released, that day, by the FDA. It was a big surprise to me because I was having a lot of attacks and I wanted some sort of preventative treatment and to find out that that was an option for me was great.
SORAYA: The first time I heard about TAKHZYRO, I heard some of my friends that live with HAE, they are patients too, and they were sharing their experiences.
BOB: So when I realized that it was important for me to start talking to my doctor about a preventative measure for my treatment, it was a conversation that we had in the past, but when he told me about TAKHZYRO, I was very involved with him and we stayed in constant dialogue of having a conversation with each other and making sure that it was the right time and that this was the right treatment for me.
ANDREA: My doctor made me realize it was time to talk to him about looking into TAKHZYRO.
BOBBI: One of the biggest things that we talked about was the hopes that it would lessen my frequency and the severity of my attacks.
SEBASTIAN: I heard about TAKHZYRO from my doctor. She informed me about the clinical trials of the medication and we followed those trials, and once it got approved in 2018 I reached out to her and I asked if I can get on that and that’s how I started.
NARRATOR: TAKHZYRO (lanadelumab) is a prescription medicine used to prevent attacks of hereditary angioedema (HAE) in people 12 years of age and older. It is not known if TAKHZYRO is safe and effective in children under 12 years of age. TAKHZYRO may cause serious side effects, including allergic reactions. Call your healthcare provider or get emergency help right away if you have any of the following symptoms: wheezing, difficulty breathing, chest tightness, fast heartbeat, faintness, rash, and/or hives.
NARRATOR: The most common side effects seen with TAKHZYRO were injection site reactions (pain, redness, and bruising), upper respiratory infection, and headache. These are not all the possible side effects of TAKHZYRO. For more information, ask your healthcare provider or pharmacist. You may report side effects to the FDA at 1-800-FDA-1088. TAKHZYRO has not been studied in pregnant or breastfeeding women. Talk to your healthcare provider about the risk of taking TAKHZYRO if you are pregnant, plan to be pregnant, are breastfeeding, or plan to breastfeed.
NARRATOR: Talk to your healthcare provider about TAKHZYRO, the only preventive HAE treatment you take as a subcutaneous injection just once every two weeks.
Connect with the HAE community at an educational event.
You can hear from an HAE specialist and get information on treatment options. See if an event is coming to an area near you!
