Patient Stories
Real people, real experiences
REIMAGINE
STORIES
TAKHZYRO
TALK
Get the inside scoop on TAKHZYRO from real people with HAE and caregivers. See how they answer common questions about life with HAE and learn from their personal experiences.
Topics
About TAKHZYRO
TAKHZYRO Experiences
Caregiver Support
Living with HAE
Clear

What made you want to start TAKHZYRO?
More Info
See what first made some real TAKHZYRO patients interested in starting. Think you’re ready to talk to a doctor about TAKHZYRO? This Doctor Discussion Guide can help you start the conversation.
View Transcript
JENNY: What made me want to start TAKHZYRO®? I love that the dosing schedule is every two weeks.
BOBBI: I was interested in trying TAKHZYRO because I heard that it could lessen the frequency of my attacks and also the severity of my attacks, and that was something that meant a lot to me.
KELLY: I like the fact that most people were able to inject within a minute or less.
LEXI: I was, you know, trying to find any treatment method that just allowed me to take my medicine less. I wanted a chance to just have to have fewer attacks, the opportunity to have fewer attacks, and to be able to take medicine less.
LEXI: And so, having both of those opportunities, I knew I needed to give it a try.
SEBASTIAN: What interested me about TAKHZYRO was that it was every two weeks and that it wasn't plasma-based. That was really important.
NARRATOR: TAKHZYRO (lanadelumab) is a prescription medicine used to prevent attacks of hereditary angioedema (HAE) in people 12 years of age and older. It is not known if TAKHZYRO is safe and effective in children under 12 years of age. TAKHZYRO may cause serious side effects, including allergic reactions.
NARRATOR: Call your healthcare provider or get emergency help right away if you have any of the following symptoms: wheezing, difficulty breathing, chest tightness, fast heartbeat, faintness, rash, and/or hives. The most common side effects seen with TAKHZYRO were injection site reactions (pain, redness, and bruising), upper respiratory infection, and headache. These are not all the possible side effects of TAKHZYRO. For more information, ask your healthcare provider or pharmacist. You may report side effects to the FDA at 1-800-FDA-1088.
NARRATOR: TAKHZYRO has not been studied in pregnant or breastfeeding women. Talk to your healthcare provider about the risk of taking TAKHZYRO if you are pregnant, plan to be pregnant, are breastfeeding, or plan to breastfeed. Talk to your healthcare provider about TAKHZYRO, the only preventive HAE treatment you take as a subcutaneous injection just once every two weeks.

What happened after you decided to start TAKHZYRO?
More Info
Wondering what happens after you and your doctor decide that TAKHZYRO is right for you? Hear about the next steps from real TAKHZYRO patients. Want more info? Keep learning about product support right here.
View Transcript
LEXI: I was able to have a nurse come and train me on how to inject, and she came twice because I really wanted to feel comfortable with taking medicine and making sure that this was the decision that I was gonna make. And so, after she came and trained me twice, I’ve taken it ever since on my own, injecting myself.
ANDREA: The process for getting started with TAKHZYRO® was pretty much straight through. My doctor mentioned that he wanted me to try TAKHZYRO. The next thing I heard from OnePath®.
JEANIE: So a nurse came to my house to train my son and myself. I believe she came out twice, if I can recall correctly and she just put me at ease. She put us at ease. She was really nice and just explained how to do it. We included my daughter into the process because she’s been through all of this with us and we did it together as a family. I did it first but she showed us, and she made sure that we were comfortable with what we were doing before.
KELLY: After getting my prescription for TAKHZYRO, I worked with my OnePath Patient Support Manager to help access my medication. She actually set up a home health nurse to come out to teach me how to administer the injection.
NARRATOR: TAKHZYRO (lanadelumab) is a prescription medicine used to prevent attacks of hereditary angioedema (HAE) in people 12 years of age and older. It is not known if TAKHZYRO is safe and effective in children under 12 years of age. TAKHZYRO may cause serious side effects, including allergic reactions.
NARRATOR: Call your healthcare provider or get emergency help right away if you have any of the following symptoms: wheezing, difficulty breathing, chest tightness, fast heartbeat, faintness, rash, and/or hives. The most common side effects seen with TAKHZYRO were injection site reactions (pain, redness, and bruising), upper respiratory infection, and headache. These are not all the possible side effects of TAKHZYRO. For more information, ask your healthcare provider or pharmacist. You may report side effects to the FDA at 1-800-FDA-1088.
NARRATOR: TAKHZYRO has not been studied in pregnant or breastfeeding women. Talk to your healthcare provider about the risk of taking TAKHZYRO if you are pregnant, plan to be pregnant, are breastfeeding, or plan to breastfeed. Talk to your healthcare provider about TAKHZYRO, the only preventive HAE treatment you take as a subcutaneous injection just once every two weeks.

How do you remember to take TAKHZYRO?
More Info
Learn how some real TAKHZYRO patients stay on schedule. Want help remembering to take your TAKHZYRO? It’s simple to sign up for reminder texts or calendar alerts.
View Transcript
JENNY: How do I remember to take TAKHZYRO®? I use my calendar app, and I set the event to occur every two weeks.
BOBBI: I use the calendar on my phone, and also my girls remind me when it’s time to give myself the injection.
KYLE: So this is a little bit of a weird one. I have a pet snake, and she is on my schedule with feeding and my medicine. So it’s an every-two-week thing saying, oh, I need to feed her so I need to take my medicine as well.
DYLAN: I generally have a reminder on my phone that will tell me when to take my medication or that it would be every other week, and when I wake up in the morning, I get a simple, little reminder to take my medication. And I take it, and I go about my day.
ANDREA: I remember to to take my TAKHZYRO by listing it on my calendar for every other Saturday between eating my French toast and my bacon.
MARSHA: I got a postcard in the mail that notified me about the text reminding program and it sounded really good, and I signed up right away. And they sent me a text and wanted to know the days of my injection and how often I needed them, and they started coming in right on time.
KEMMI: So I get a text alert the day before so that I make sure that I have my medicine ready and then another text the day of.
KELLY: I set alarms on my phone, and I’ve got it to where it presets. So every time that it’s time for my injection, it automatically goes off, and I have a calendar that I use for work that I see every day that I write it in too.
JUAN: I help my wife remember to take TAKHZYRO by using the calendar app on our phone. We set up a recurring event that repeats itself and reminds us that today is TAKHZYRO day.
NARRATOR: TAKHZYRO (lanadelumab) is a prescription medicine used to prevent attacks of hereditary angioedema (HAE) in people 12 years of age and older. It is not known if TAKHZYRO is safe and effective in children under 12 years of age. TAKHZYRO may cause serious side effects, including allergic reactions. Call your healthcare provider or get emergency help right away if you have any of the following symptoms: wheezing, difficulty breathing, chest tightness, fast heartbeat, faintness, rash, and/or hives.
NARRATOR: The most common side effects seen with TAKHZYRO were injection site reactions (pain, redness, and bruising), upper respiratory infection, and headache. These are not all the possible side effects of TAKHZYRO. For more information, ask your healthcare provider or pharmacist. You may report side effects to the FDA at 1-800-FDA-1088. TAKHZYRO has not been studied in pregnant or breastfeeding women. Talk to your healthcare provider about the risk of taking TAKHZYRO is you are pregnant, plan to be pregnant, are breastfeeding, or plan to breastfeed.
NARRATOR: Talk to your healthcare provider about TAKHZYRO, the only preventive HAE treatment you take as a subcutaneous injection just once every two weeks.

What is it like to travel with TAKHZYRO?
More Info
Planning is everything. Get TAKHZYRO travel tips from real patients.
View Transcript
LEXI: I've always loved to travel. I love to take quick weekend trips where I'm gone from Friday to Monday. I love to take long trips where I get to relax and just enjoy wherever I'm at. Traveling with TAKHZYRO® allows me to do that with more confidence, in having to take my medicine either before I leave for my trip because it was the time to inject and I don't have to inject again for two more weeks.
KEMMI: My patient support manager, with OnePath® sent me a travel kit, and it includes a cold pack to keep my medication cold, and I've traveled with it by air.
KEMMI: I've had no problems going through security. And if I'm just going away for the weekend, it's really easy to take with me.
JACK: For myself, it's great to know that TAKHZYRO is once every two weeks. So, a lot of times when I'm traveling a lot, I can plan around when I need to give myself an injection.
KYLE: Honestly, I really haven't had to travel with TAKHZYRO, because it's an every-two-week administer, and I take it before I even have to travel. It's just how my schedule works, actually.
KYLE: And if I do have to travel with it, my doctor has provided me a travel note saying that I have to have this for medical purposes.
LINDA: I had previously been taking a carry-on on the plane with just medication and had to check a bag. Now, with TAKHZYRO, I have the freedom of packing one dose of medication in one box, maybe two if I'm going to have an extended stay.
NARRATOR: TAKHZYRO (lanadelumab) is a prescription medicine used to prevent attacks of hereditary angioedema (HAE) in people 12 years of age and older.
NARRATOR: It is not known if TAKHZYRO is safe and effective in children under 12 years of age. TAKHZYRO may cause serious side effects, including allergic reactions. Call your healthcare provider or get emergency help right away if you have any of the following symptoms: wheezing, difficulty breathing, chest tightness, fast heartbeat, faintness, rash, and/or hives. The most common side effects seen with TAKHZYRO were injection site reactions (pain, redness, and bruising), upper respiratory infection, and headache.
NARRATOR: These are not all the possible side effects of TAKHZYRO. For more information, ask your healthcare provider or pharmacist. You may report side effects to the FDA at 1-800-FDA-1088. TAKHZYRO has not been studied in pregnant or breastfeeding women. Talk to your healthcare provider about the risk of taking TAKHZYRO if you are pregnant, plan to be pregnant, are breastfeeding, or plan to breastfeed. Talk to your healthcare provider about TAKHZYRO, the only preventive HAE treatment you take as a subcutaneous injection just once every two weeks.

The Making of TAKHZYRO
More Info
Have questions about how TAKHZYRO is made? Real TAKHZYRO patients Jenny and Bobbi have some answers. Next, learn how TAKHZYRO works in the body.
View Transcript
JENNY: Hello, everyone. I’m Jenny, and this is Bobbi.
BOBBI: We both have HAE, and we also both use TAKHZYRO®.
JENNY: Mm-hmm. TAKHZYRO is a medication used to prevent attacks of HAE in patients 12 years of age and older.
BOBBI: As you may know, TAKHZYRO is not made from human plasma. This made me wonder: What is it made from?
JENNY: Mm-hmm, right. Me too. So when my doctor prescribed TAKHZYRO for me, we talked about how it was made.
BOBBI: We thought other people might be wondering too. So we’re here to tell you.
JENNY: TAKHZYRO is the only preventive treatment for HAE that’s made using cells in a lab.
BOBBI: This means it does not depend on human plasma donations.
JENNY: Correct. Instead, the cells are multiplied as needed to make TAKHZYRO.
BOBBI: And while the cells originally came from hamster ovaries, no hamsters are used or harmed in the making of TAKHZYRO.
JENNY: A similar process has been used for decades to make medications for many other conditions, including osteoporosis, rheumatoid arthritis, Crohn’s disease, psoriasis, and asthma.
BOBBI: That’s pretty cool, right?
JENNY: I think so.
BOBBI: You can ask your doctor for more information about this if you are curious. In the meantime, here’s some important safety information you should know, too.
NARRATOR: TAKHZYRO (lanadelumab) is a prescription medicine used to prevent attacks of hereditary angioedema (HAE) in people 12 years of age and older. It is not known if TAKHZYRO is safe and effective in children under 12 years of age. TAKHZYRO may cause serious side effects, including allergic reactions. Call your healthcare provider or get emergency help right away if you have any of the following symptoms: wheezing, difficulty breathing, chest tightness, fast heartbeat, faintness, rash, and/or hives.
NARRATOR: The most common side effects seen with TAKHZYRO were injection site reactions (pain, redness, and bruising), upper respiratory infection, and headache. These are not all the possible side effects of TAKHZYRO. For more information, ask your healthcare provider or pharmacist. You may report side effects to the FDA at 1-800-FDA-1088. TAKHZYRO has not been studied in pregnant or breastfeeding women. Talk to your healthcare provider about the risk of taking TAKHZYRO if you are pregnant, plan to be pregnant, are breastfeeding, or plan to breastfeed.
NARRATOR: Talk to your healthcare provider about TAKHZYRO, the only preventive HAE treatment you take as a subcutaneous injection just once every two weeks.

What’s the best thing about being a caregiver?
More Info
Caregivers share their personal perspectives they gained from supporting their loved ones.
View Transcript
JASON: The best thing about being a caregiver is informing other people and other caregivers and telling your story to them to help them possibly relieve some stress and worrying in their lives.
JUAN: The best thing about being a caregiver is being able to advocate for your loved one and being able to make sure that they get the care that they need, and also being able to educate others around you in the community about HAE and how to manage the condition.
HEATHER: The best thing about being a caregiver, to me, is that you have somebody's back.
HEATHER: You're actually helping making somebody else's life better and that they have somebody to lean on, and they're not alone. You know that, you know, I've got you. I've got you. We're going to do this together. We're going to stay organized. We're going to stay focused, and you're going to get through this.
NARRATOR: TAKHZYRO® (lanadelumab) is a prescription medicine used to prevent attacks of hereditary angioedema (HAE) in people 12 years of age and older. It is not known if TAKHZYRO is safe and effective in children under 12 years of age.
NARRATOR: TAKHZYRO may cause serious side effects, including allergic reactions. Call your healthcare provider or get emergency help right away if you have any of the following symptoms: wheezing, difficulty breathing, chest tightness, fast heartbeat, faintness, rash, and/or hives. The most common side effects seen with TAKHZYRO were injection site reactions (pain, redness, and bruising), upper respiratory infection, and headache. These are not all the possible side effects of TAKHZYRO. For more information, ask your healthcare provider or pharmacist.
NARRATOR: You may report side effects to the FDA at 1-800-FDA-1088. TAKHZYRO has not been studied in pregnant or breastfeeding women. Talk to your healthcare provider about the risk of taking TAKHZYRO if you are pregnant, plan to be pregnant, are breastfeeding, or plan to breastfeed. Talk to your healthcare provider about TAKHZYRO, the only preventive HAE treatment you take as a subcutaneous injection just once every two weeks.

What advice do you have for other caregivers?
More Info
Educate yourself, be prepared, remember there’s a community of support out there – hear more thoughts and advice from fellow caregivers.
View Transcript
BOBBI: For other caregivers dealing with HAE, I think the biggest thing you could do is just be supportive and try to understand even if you don't truly understand what that person is going through. But just be there, and love them through it.
JASON: My advice to a new caregiver is to ask a lot of questions, get a lot of answers, and don't be scared to ask questions. There's a lot of people out there that can help, have answers, that they have gone through in their life. It may help them out.
PAM: I would tell caregivers first of all, if you don't have HAE, is to find out about it, to-to know what's going on, and what things need to be done because sometimes those attacks can be an emergency or a life-threatening situation. So, you need to be prepared about what needs to happen for the person who is having the attack. And then I think it's to be sensitive to what's going on with them, to find out or look for clues as to when they might be having attacks coming on, and they may not even recognize it themselves.
JUAN: What I would like say to other caregivers is don't lose hope. There is support out there. There is help out there, and there's a community of people that have gone through the same exact situation that you are in, and there are people that you can talk to.
NARRATOR: TAKHZYRO® (lanadelumab) is a prescription medicine used to prevent attacks of hereditary angioedema (HAE) in people 12 years of age and older. It is not known if TAKHZYRO is safe and effective in children under 12 years of age.
NARRATOR: TAKHZYRO may cause serious side effects, including allergic reactions. Call your healthcare provider or get emergency help right away if you have any of the following symptoms: wheezing, difficulty breathing, chest tightness, fast heartbeat, faintness, rash, and/or hives. The most common side effects seen with TAKHZYRO were injection site reactions (pain, redness, and bruising), upper respiratory infection, and headache. These are not all the possible side effects of TAKHZYRO. For more information, ask your healthcare provider or pharmacist.
NARRATOR: You may report side effects to the FDA at 1-800-FDA-1088. TAKHZYRO has not been studied in pregnant or breastfeeding women. Talk to your healthcare provider about the risk of taking TAKHZYRO if you are pregnant, plan to be pregnant, are breastfeeding, or plan to breastfeed. Talk to your healthcare provider about TAKHZYRO, the only preventive HAE treatment you take as a subcutaneous injection just once every two weeks.

What was your diagnostic journey for HAE?
More Info
For some people, getting accurately diagnosed with HAE can be a challenging journey. See what life was like for these patients—before and after—learning they had HAE.
View Transcript
KYLE: When I got first diagnosed with HAE, I can bring myself back to that exact day. It was Halloween and my face is swollen up. I felt like a monster. And I was the only one that couldn’t take my mask off. I was searching for an answer, and I finally found it. Yes, this sounds weird. It felt like I was punched in the gut, and my world was crumbling down around me. But since then, I’ve grown stronger. HAE lives with me, and I don’t live with it. I don’t let it control me, and it’s an amazing experience to come along to where I’m at now.
NINA: My journey of getting diagnosed with HAE was long and difficult. I was the first person in the family to actually be diagnosed, and I went through every physician and every specialty that was available to find out what was wrong with me. And I had been told, everything from it’s all in your head and it’s-you’re fine to there’s something wrong but we don’t know what it is, we don’t know what to do for it, and we don’t know how to help you.
NINA: So it was really, really quite difficult, um, not having a family history on paper or anybody who had plowed the road, so to speak, before me. I was doing it all on my own. And I almost gave up several times, but then I thought, well, if I don’t do it for my family who will? I’ve got children and grandchildren, and I don’t want them to have to go through the entire path that I did because I only got diagnosed when I was 50 years old. So I had many, many, many years before I was diagnosed.
PAM: Getting diagnosed with HAE, for me, took years. I spent more than a decade probably in the emergency room with uncontrollable vomiting and excruciating pain and really no answers as to what was wrong. And it wasn’t until I took one of my daughters in because she was having asthma and the doctor saw that my hand was swollen, and he says what’s going on? I’m sure he was concerned that I was having some kind of allergic reaction. And I said, I don’t know, it’s just swollen and it’s really not going down. And he took a look at it and said I think you may have hereditary angioedema.
PAM: I said, what’s that? What can you do for it? And at that point, there really was nothing you could do for it. So I just lived my life without any options and really answers for a long time. And then, we started making progress and seeing medicines become available. But it was years and years, more than a decade before I was able to get an answer as to what was going on.
NARRATOR: TAKHZYRO® (lanadelumab) is a prescription medicine used to prevent attacks of hereditary angioedema (HAE) in people 12 years of age and older. It is not known if TAKHZYRO is safe and effective in children under 12 years of age. TAKHZYRO may cause serious side effects, including allergic reactions. Call your healthcare provider or get emergency help right away if you have any of the following symptoms: wheezing, difficulty breathing, chest tightness, fast heartbeat, faintness, rash, and/or hives.
NARRATOR: The most common side effects seen with TAKHZYRO were injection site reactions (pain, redness, and bruising), upper respiratory infection, and headache. These are not all the possible side effects of TAKHZYRO. For more information, ask your healthcare provider or pharmacist. You may report side effects to the FDA at 1-800-FDA-1088. TAKHZYRO has not been studied in pregnant or breastfeeding women. Talk to your healthcare provider about the risk of taking TAKHZYRO if you are pregnant, plan to be pregnant, are breastfeeding, or plan to breastfeed.
NARRATOR: Talk to your healthcare provider about TAKHZYRO, the only preventive HAE treatment you take as a subcutaneous injection just once every two weeks.

How do you see the future with HAE?
More Info
These patients all have a story to share about diagnosis and managing HAE in their day-to-day lives. But, what’s next? Hear thoughts on the future of HAE from people who live with it every day.
View Transcript
JENNY: I see a hopeful future for people with HAE, both with preventative treatment and acute treatment.
NINA: I can’t wait to see how the newer generation is going to do with the treatment that’s available now. They will have a very, very different life than we did.
KELLY: I feel hopeful for the future for HAE patients. I think that we’re on a positive note and it’s——we only have one way to go, and that’s up.
JUAN: I see a hopeful future for people with HAE now that we have different options for treatment, both acute and prophylactic.
SCOTT: I see the future as being much brighter with technological developments in medication and science. I think we’ve come a long way from where we were before. It’s much easier to connect with people and find out about advancements in it and to meet with other people that have it, and really learn from them as well.
PAM: I see the future of HAE at this point in time as one of——not one of the——as the brightest I’ve ever seen with the most promise because we have a lot of options. We have a lot of information, and we’ve got a very proactive group that works on continuing to make things better for us.
PAM: So as far as I’m concerned, the future’s never been better for those of us with HAE.
NARRATOR: TAKHZYRO® (lanadelumab) is a prescription medicine used to prevent attacks of hereditary angioedema (HAE) in people 12 years of age and older. It is not known if TAKHZYRO is safe and effective in children under 12 years of age. TAKHZYRO may cause serious side effects, including allergic reactions. Call your healthcare provider or get emergency help right away if you have any of the following symptoms: wheezing, difficulty breathing, chest tightness, fast heartbeat, faintness, rash, and/or hives.
NARRATOR: The most common side effects seen with TAKHZYRO were injection site reactions (pain, redness, and bruising), upper respiratory infection, and headache. These are not all the possible side effects of TAKHZYRO. For more information, ask your healthcare provider or pharmacist. You may report side effects to the FDA at 1-800-FDA-1088. TAKHZYRO has not been studied in pregnant or breastfeeding women. Talk to your healthcare provider about the risk of taking TAKHZYRO if you are pregnant, plan to be pregnant, are breastfeeding, or plan to breastfeed.
NARRATOR: Talk to your healthcare provider about TAKHZYRO, the only preventive HAE treatment you take as a subcutaneous injection just once every two weeks.

What does HAE Day mean to you?
More Info
Every year the HAE community comes together to reflect and raise awareness on hae day :-). Hear what May 16th means from people with HAE and their family members.
View Transcript
LEXI: HAE Day, for me, means an opportunity to just reflect on where I’ve come from and where I’m headed with HAE, reflecting on my family who also has the condition, and where we've been, and you know, again, where we're headed as a family. And then the community. I mean, there are people who are just advocating for patients every single day but that one day to be able to just pause and be thankful for the opportunity to have a day for a condition that is, was seemingly invisible for a long time is huge, and it’s so impactful.
BOB: It is May 16th, but every day for me and my family is HAE Day. Having a treatment plan currently that works for me and, my lifestyle, I celebrate everyday as HAE day.
KEMMI: Well, knowing that HAE has a dedicated day is an opportunity to help share information with my friends and my family who might not understand it, who’ve been alongside me in this journey of before I was diagnosed and being concerned about what was wrong. And now, it’s just a chance for them to get involved and ask questions and to learn themselves and to be a part of this alongside me.
MARIE: It’s hard to believe that so many people have never heard of it. I know it’s a very rare disease but I feel good that I’m making them aware that this is out there for them.
KYLE: We still come together and we celebrate and raise awareness so everybody can be aware and enjoy the community that we have and the network that we have.
NARRATOR: TAKHZYRO® (lanadelumab) is a prescription medicine used to prevent attacks of hereditary angioedema (HAE) in people 12 years of age and older. It is not known if TAKHZYRO is safe and effective in children under 12 years of age. TAKHZYRO may cause serious side effects, including allergic reactions. Call your healthcare provider or get emergency help right away if you have any of the following symptoms: wheezing, difficulty breathing, chest tightness, fast heartbeat, faintness, rash, and/or hives.
NARRATOR: The most common side effects seen with TAKHZYRO were injection site reactions (pain, redness, and bruising), upper respiratory infection, and headache. These are not all the possible side effects of TAKHZYRO. For more information, ask your healthcare provider or pharmacist. You may report side effects to the FDA at 1-800-FDA-1088. TAKHZYRO has not been studied in pregnant or breastfeeding women. Talk to your healthcare provider about the risk of taking TAKHZYRO if you are pregnant, plan to be pregnant, are breastfeeding, or plan to breastfeed.
NARRATOR: Talk to your healthcare provider about TAKHZYRO, the only preventive HAE treatment you take as a subcutaneous injection just once every two weeks.

What have you learned from other people with HAE?
More Info
You are not alone in HAE. Hear why some people with HAE feel it’s so important to connect with others who have been where they are.
View Transcript
KYLE: I’ve learned that we’re all family. No matter where we come from, no matter what lifestyle we have, we’re all a huge family.
MARSHA: I’ve learned a lot from other HAE patients, and the main thing I’ve learned is how strong they are, and that in turn has revealed to me that I’m strong, too. And I never thought of myself as a strong person, but now I can see that to have survived what I’ve been through does make me a strong person. And seeing how they conquer the issues in their lives, it really gives me strength to go on.
BOB: So, one of the things that I’ve learned from other people that also have HAE is that we’re, we are a resilient group of people. We’ve been knocked down, we get back up, and we’ve got to take the advice of others that have walked in our shoes.
KEMMI: The HAE community of patients is a relatively small one, so we communicate with one another a lot. The biggest thing that I’ve learned is I’m not alone. I have a community of support that has experienced the things that I’ve been through, whether it had been misdiagnosis or delays in diagnosis. We discuss future treatments and possibilities. And it has meant a lot to me to have that community support and to be able to offer support to others as well.
SCOTT: I think the most important thing I’ve learned from other patients with HAE is you’re not alone. Especially with rare diseases, it’s easy to get caught in that cycle of thinking I’m the only one or I’m the only one that can be affected, and it doesn’t matter to anybody else. But there’s really a lot of people it affects including people that aren’t patients. And it’s important to remember that because they can help you.
SEDONA: The HAE community has taught me just to stay positive through the good times and bad. And they’re always there for you. And my boyfriend has HAE also, and he has taught me to be more proactive with my health and he’s helped me a lot and I’ve helped him a lot through it. And we’ve grown together as patients and learned how to take care of ourselves to the best of our ability.
NARRATOR: TAKHZYRO (lanadelumab) is a prescription medicine used to prevent attacks of hereditary angioedema (HAE) in people 12 years of age and older. It is not known if TAKHZYRO is safe and effective in children under 12 years of age. TAKHZYRO may cause serious side effects, including allergic reactions. Call your healthcare provider or get emergency help right away if you have any of the following symptoms: wheezing, difficulty breathing, chest tightness, fast heartbeat, faintness, rash, and/or hives.
NARRATOR: The most common side effects seen with TAKHZYRO were injection site reactions (pain, redness, and bruising), upper respiratory infection, and headache. These are not all the possible side effects of TAKHZYRO. For more information, ask your healthcare provider or pharmacist. You may report side effects to the FDA at 1-800-FDA-1088. TAKHZYRO has not been studied in pregnant or breastfeeding women. Talk to your healthcare provider about the risk of taking TAKHZYRO if you are pregnant, plan to be pregnant, are breastfeeding, or plan to breastfeed.
NARRATOR: Talk to your healthcare provider about TAKHZYRO, the only preventive HAE treatment you take as a subcutaneous injection just once every two weeks.

How did you hear about TAKHZYRO?
More Info
See how real people with HAE found out about TAKHZYRO for the first time and why they decided with their doctors to give it a try.
View Transcript
NARRATOR: TAKHZYRO is a prescription medicine used to prevent attacks of hereditary angioedema (HAE) in people 12 years of age and older. TAKHZYRO may cause serious side effects, including allergic reactions. The most common side effects seen with TAKHZYRO were injection site reactions (pain, redness, and bruising), upper respiratory infection, and headache.
JACK: The first time I heard about TAKHZYRO was in my doctor’s office and it had just been released, that day, by the FDA. It was a big surprise to me because I was having a lot of attacks and I wanted some sort of preventative treatment and to find out that that was an option for me was great.
SORAYA: The first time I heard about TAKHZYRO, I heard some of my friends that live with HAE, they are patients too, and they were sharing their experiences.
BOB: So when I realized that it was important for me to start talking to my doctor about a preventative measure for my treatment, it was a conversation that we had in the past, but when he told me about TAKHZYRO, I was very involved with him and we stayed in constant dialogue of having a conversation with each other and making sure that it was the right time and that this was the right treatment for me.
ANDREA: My doctor made me realize it was time to talk to him about looking into TAKHZYRO.
BOBBI: One of the biggest things that we talked about was the hopes that it would lessen my frequency and the severity of my attacks.
SEBASTIAN: I heard about TAKHZYRO from my doctor. She informed me about the clinical trials of the medication and we followed those trials, and once it got approved in 2018 I reached out to her and I asked if I can get on that and that’s how I started.
NARRATOR: TAKHZYRO (lanadelumab) is a prescription medicine used to prevent attacks of hereditary angioedema (HAE) in people 12 years of age and older. It is not known if TAKHZYRO is safe and effective in children under 12 years of age. TAKHZYRO may cause serious side effects, including allergic reactions. Call your healthcare provider or get emergency help right away if you have any of the following symptoms: wheezing, difficulty breathing, chest tightness, fast heartbeat, faintness, rash, and/or hives.
NARRATOR: The most common side effects seen with TAKHZYRO were injection site reactions (pain, redness, and bruising), upper respiratory infection, and headache. These are not all the possible side effects of TAKHZYRO. For more information, ask your healthcare provider or pharmacist. You may report side effects to the FDA at 1-800-FDA-1088. TAKHZYRO has not been studied in pregnant or breastfeeding women. Talk to your healthcare provider about the risk of taking TAKHZYRO if you are pregnant, plan to be pregnant, are breastfeeding, or plan to breastfeed.
NARRATOR: Talk to your healthcare provider about TAKHZYRO, the only preventive HAE treatment you take as a subcutaneous injection just once every two weeks.
Connect with the HAE community at an educational event.
You can hear from an HAE specialist and get information on treatment options. See if an event is coming to an area near you!